walk thank you 2018
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Down Syndrome of Louisville, Inc. (DSL) is a non-profit organization founded in 1977 by Mary Carter, an early childhood educator who established the first Early Intervention Education program for children with Down syndrome in Kentucky. Our grassroots organization grew with parent support to incorporate in 1991 to offer services for individuals with Down syndrome of all ages in Southern Indiana and Kentucky. The Down Syndrome of Louisville Lifelong Learning Centers in Louisville, KY & New Albany, IN are the first in the nation to offer comprehensive developmental services.
Family Member News
Down Syndrome Research Awareness ConferenceDSL
Saturday, November 10 2018
Down Syndrome Research Awareness Conference
Presented by the National Down Syndrome Society
Down Syndrome of Louisville
5001 South Hurstbourne Parkway
In partnership with
University of Kentucky Sanders Brown Center on Aging
The Down Syndrome Project at Emory University
University of Louisville Medical School and University of Cincinnati
This free half-day conference will highlight local, regional, and national research efforts.
Childcare will be provided on location and lunch will be provided. The agenda and additional information will be posted on our website as soon as it becomes available.
IMPORTANT WAIVER WAITLIST INFORMATIONDSL
Important Update on Michelle P Waiver waiting list
The Kentucky State Cabinet for Health and Family Services is currently reviewing all names on the waiting list for the Michelle P. waiver for further review for eligibility. This process will take many months to complete.
It is imperative that the state has your current address and phone numbers so they can contact you to conduct the review.
If the state cannot reach you within 14 days of their attempt to schedule a review your family member will be removed from the waiting list.
Please email the state at Sabrina.firstname.lastname@example.org to update your records.
To verify your family member is on the Michelle P waiver waiting list call 502-564-1647 option#4 then option#1
The Executive Director is charged with providing vision and dynamic leadership to carry out the mission of DSL. Responsibilities include overall strategic planning, revenue generation, financial management, program operations, volunteer management, member relations, public relations, and advocacy. The Executive Director reports directly to the Board President and supports the Board of Directors.
Click the link above to view the job description and to submit your resume.
Notes from Dr. Brian Skotko
The Power of Fiber
New research is unlocking the medical benefits of fiber. How does it work? And, how much should your son or daughter with Down syndrome be eating?
Scientists are now understanding why fiber is good for us.
Fiber is known to not only help constipation, but also to reduce the risks of diabetes and obesity, conditions that can occur with Down syndrome.
The fiber is feeding the billions of natural bacteria in our stomach linings, the same bacteria that are needed to keep the immune system in good shape.
Which foods contain good dietary fiber?
Grains, fruits, vegetables, beans, nuts, and seeds are all good sources of fiber.
Does your son or daughter have celiac disease? We've got you covered.
How much fiber should your son or daughter be eating?
This depends on their age and sex. Click the link above to read more.
Inclement Weather Policy:
Our Kentucky Campus follows the Jefferson County Public School Closings.
Our Indiana Campus follows the
New Albany/ Floyd County School Closings
During inclement weather for
weekend events, please call ahead to check for cancellations 502-495-5088
or check DSL Facebook Page
Down Syndrome Research Conference Presenters
Priya Chandan, MD, M.P.H.
University of Louisville School of Medicine
Topic: Research and Advocacy in Medical Education
Description:Dr. Chandan will discuss medical education efforts at the local and national levels aimed at training medical students and physicians to better serve patients with intellectual/developmental disabilities
Stephanie Sherman, Ph.D.- Emory University
Topic: DS360: a collaborative study to identify genetic and environmental factors of severity
Description: Dr. Sherman will present an overview of research in Down Syndrome and the new advanced tools that will help answer significant clinical questions. She will highlight a nationwide research study that is helping to understand what causes the extra chromosome 21 to be present, and why some children with Down syndrome are more likely than others to have certain medical problems
Anna Ebensten, Ph.D.—Cincinnati Children’s Hospital Medical Center
Topic: Sleep in Children with Down Syndrome
Description: Dr. Esbensen will review findings from her recent project aimed at improving sleep in children with Down syndrome, as well as information on her current work on cognitive outcome measures for use in this population.
Laura J. Hahn, Ph.D. University of Illinois at Urbana-Champaign
Topic: Early Communication and Social Abilities in Young Children with Down Syndrome: Implications for Interventions
Description: Dr. Hahn will present research from three recent studies that describe early communication and social abilities in young children with Down syndrome. The first study summarizes the 11 available research studies on the use of joint attention, the second study describes the development of early communication skills, and the third examines the use of communicative eye gaze in children who are minimally verbal. She will describe the state of research on early development in Down syndrome and discuss the implications of our findings
Marie Moore Channell, Ph.D. University of Illinois at Urbana-Champaign
Topic: Perspective-taking in youth with Down syndrome: From recognizing to talking about others’ emotions
Description: Dr. Channell will present research from two recent studies that show the developmental progression of social-emotional skills important to everyday social interactions, namely the ability to take others’ perspectives. The first study examines how youth with Down syndrome recognize other children’s emotions, and the second study investigates how they develop the ability to talk about others’ emotions and mental states (e.g., thoughts, desires, intentions). She will introduce current methodologies in behavioral research on Down syndrome and discuss how our findings can be applied to clinical settings to promote everyday social communication and interaction.
Jenny Kimes, Psy.D. Down Syndrome Louisville
Topic: The Down Syndrome Diet: Changing the 'Course' through Nutrition
Description: Discover how to eliminate or reduce the symptomatology of many of the health and developmental issues impacting children and adults with Down syndrome including autism, attention deficit disorder, diabetes, hypothyroidism and even Alzheimer's Dementia. A literature review implicating the high sugar and carbohydrate diet with many of the gastrointestinal, neurological, endocrine and immune system dysfunctions associated with Down syndrome will be presented. A synthesis of recent research regarding dietary interventions will be discussed and recommendations from health care providers will be reviewed to see how we can impact the future and change the course of the declining outlook for the healthcare epidemics affecting individuals with Down syndrome.
Sujata Bardhan, Ph.D Scientific Program Manager National Institute of Child Health and Human Development (NICHD)
Topic: NIH INCLUDE project and the importance of participating in DS Connect
Description: Dr. Bardhan will provide an update on the significant work that NIH is doing to advance Down syndrome research. She will provide information about the recently established Investigation of Co-occurring conditions across the Lifespan to Understand Down syndrome (INCLUDE) project, a trans-NIH effort on Down syndrome spanning basic to clinical research. She will also provide an overview of DS-Connect®: The Down Syndrome Registry, which is
a resource where people with Down syndrome and their families can connect with research, health care providers, and more.
Elizabeth Head, Ph. D. University of Kentucky Sanders-Brown Center on Aging
Topic: Prevention and Treatment of Alzheimer’s Disease
Description: Dr. Head will present information on research to identify interventions that may prevent the onset and/or progression of Alzheimer’s disease and thus promote healthy brain aging. She will discuss information learned from a study of aging in people with Down syndrome enrolled in the University of Kentucky Aging and Down syndrome study.