Helpful Links

National and State of Kentucky/Indiana Resources

  • PowerPoint presentation by Dr. Jenny Kimes

  • Discoveries of how the brain develops and functions are occurring at an accelerating pace. The Kennedy Krieger Institute leads the way in translating these scientific advances into new therapies and educational interventions, while providing an inspirational environment for training tomorrow's leaders in the field. These successes benefit millions of children and families around the world.

  • Woodbine House is a publisher specializing in books about children with special needs. Our titles within the Special-Needs Collection cover AD/HD, autism, celiac disease, cerebral palsy, Down syndrome, spina bifida, early intervention, inclusion, special education, communication skills, and more. Since 1985 we've prided ourselves on publishing books of the highest quality and best value for parents, children, therapists, health care providers, and teachers.

  • Are you tired of your child's glasses always slipping, looking too big or uncomfortable? Introducing a new concept in eyewear... Specs4Us are frames specially designed to fit children and adults with Down Syndrome and others with special needs.

  • Downs Designs® Jeans are designed for the unique body shape of a person with Down syndrome. All jeans have no buttons, zippers or tags, a full elastic waistband, belt loops, mock fly and the denim is soft and stretchy. They are stylish and comfortable and instill confidence and independence in all who wear them! Our free try-on service promises a perfect!

  • Teepa Snow’s philosophy and education is reflective of her life-long journey professionally caring for and personally living with various forms of dementia. This person-centered approach evolved to meet the complex and unique needs of individuals using effective and structured technique. Teepa and her company strive to grow appreciation of differences that will lead to better care and support of those living with changing abilities.

  • The Down Syndrome Aging Study is a new 5 year federally funded project taking place at the University of Kentucky that will allow researchers to follow adults with Down syndrome as they age to learn more about the challenges they might face.

  • Formed in 1980, the Alzheimer's Association advances research to end Alzheimer's and dementia while enhancing care for those living with the disease.

  • Studies suggest that more than 75 percent of those with Down syndrome aged 65 and older have Alzheimer's disease, nearly 6 times the percentage of people in this age group who do not have Down syndrome.

  • Since Alzheimer's affects people in different ways, each person will experience symptoms - or progress through Alzheimer's stages - differently.

  • We are a small nonprofit with great vision: a society that includes, values and empowers children and adults with developmental disabilities.

  • The Parent Portal provides answers to common questions asked by your child, communication strategies, healthy sexual development, myths and facts on sexual health education, and print and web resources that supplement your understanding and knowledge of healthy sexuality.

  • Parents want to provide the guidance and knowledge their
    children need to become responsible and happy adults. But they
    can also sometimes be afraid of talking about sexuality with their
    children

  • This groundbreaking resource for families and caregivers of adults with Down syndrome covers medical issues commonly encountered in adulthood, as well as how to provide person-centered care.

    The goal for this guidebook is to provide guidance, education and support to families and caregivers of older adults with Down syndrome, and to prepare them for medical issues commonly encountered in adulthood.