Helpful Links

National and State of Kentucky/Indiana Resources

  • The Global Down Syndrome Foundation works to improve the lives of people with Down Syndrome and their families.

  • Click the link above to get a list of local Alzheimer's and memory loss support groups and meetings

  • Notes from Dr. Brian Skotko

    The Power of Fiber
    New research is unlocking the medical benefits of fiber. How does it work? And, how much should your son or daughter with Down syndrome be eating?
    Scientists are now understanding why fiber is good for us.
    Fiber is known to not only help constipation, but also to reduce the risks of diabetes and obesity, conditions that can occur with Down syndrome. The fiber is feeding the billions of natural bacteria in our stomach linings, the same bacteria that are needed to keep the immune system in good shape.

  • Notes from Dr. Brian Skotko
    Which foods contain good dietary fiber?
    Grains, fruits, vegetables, beans, nuts, and seeds are all good sources of fiber.
    How much fiber should my child be eating?

    This link gives you tips about foods with good sources of fiber and a guide about how much fiber your child needs.

  • Notes from Dr. Brian Skotko
    Does your son or daughter have celiac disease? We have you covered with these tips.

  • PowerPoint presentation by Dr. Jenny Kimes

  • Discoveries of how the brain develops and functions are occurring at an accelerating pace. The Kennedy Krieger Institute leads the way in translating these scientific advances into new therapies and educational interventions, while providing an inspirational environment for training tomorrow's leaders in the field. These successes benefit millions of children and families around the world.

  • Woodbine House is a publisher specializing in books about children with special needs. Our titles within the Special-Needs Collection cover AD/HD, autism, celiac disease, cerebral palsy, Down syndrome, spina bifida, early intervention, inclusion, special education, communication skills, and more. Since 1985 we've prided ourselves on publishing books of the highest quality and best value for parents, children, therapists, health care providers, and teachers.

  • Are you tired of your child's glasses always slipping, looking too big or uncomfortable? Introducing a new concept in eyewear... Specs4Us are frames specially designed to fit children and adults with Down Syndrome and others with special needs.

  • Downs Designs® Jeans are designed for the unique body shape of a person with Down syndrome. All jeans have no buttons, zippers or tags, a full elastic waistband, belt loops, mock fly and the denim is soft and stretchy. They are stylish and comfortable and instill confidence and independence in all who wear them! Our free try-on service promises a perfect!

  • Teepa Snow’s philosophy and education is reflective of her life-long journey professionally caring for and personally living with various forms of dementia. This person-centered approach evolved to meet the complex and unique needs of individuals using effective and structured technique. Teepa and her company strive to grow appreciation of differences that will lead to better care and support of those living with changing abilities.

  • The Down Syndrome Aging Study is a new 5 year federally funded project taking place at the University of Kentucky that will allow researchers to follow adults with Down syndrome as they age to learn more about the challenges they might face.

  • Formed in 1980, the Alzheimer's Association advances research to end Alzheimer's and dementia while enhancing care for those living with the disease.

  • Studies suggest that more than 75 percent of those with Down syndrome aged 65 and older have Alzheimer's disease, nearly 6 times the percentage of people in this age group who do not have Down syndrome.

  • Since Alzheimer's affects people in different ways, each person will experience symptoms - or progress through Alzheimer's stages - differently.

  • We are a small nonprofit with great vision: a society that includes, values and empowers children and adults with developmental disabilities.

  • The Parent Portal provides answers to common questions asked by your child, communication strategies, healthy sexual development, myths and facts on sexual health education, and print and web resources that supplement your understanding and knowledge of healthy sexuality.

  • Parents want to provide the guidance and knowledge their
    children need to become responsible and happy adults. But they
    can also sometimes be afraid of talking about sexuality with their
    children

  • This groundbreaking resource for families and caregivers of adults with Down syndrome covers medical issues commonly encountered in adulthood, as well as how to provide person-centered care.

    The goal for this guidebook is to provide guidance, education and support to families and caregivers of older adults with Down syndrome, and to prepare them for medical issues commonly encountered in adulthood.